Debs would like to invite you, your family and friends to help her raise funds for The Myelin Project UK. The UK Charity really needs our support and help, it is understandable that some people feel they do not want to participate in the activities, but you can help in other ways, simply by making a small donation via the Myelin Project Website www.myelinproject.co.uk, offering to help or even sponsoring the fund raiser £1 "any of which are appreciated". We could all stand back or turn a blind eye and take the view this is not our problem, but some of us feel compelled to help fellow man, it should not take for our loved ones or friends to be diagnosed with these dreadful diseases before we offer our help, nor do you need to be a do-gooder to get involved, all you need is compassion, empathy, and feelings of love for each other and to realise we are all one and all need to take an unselfish approach in helping each other through our troubles, please read the following information on The Myelin Project from their USA website;

The Myelin Project aims to accelerate research on myelin repair. Myelin can be destroyed by hereditary neurodegenerative disorders such as the leukodystrophies, and by acquired diseases such as multiple sclerosis.




Behind the Myelin Project is a multinational gathering of families struck by one demyelinating disease or another. Refusing to accept the conventional view that science cannot be hurried, they resolved to advance the moment when myelin could be restored. They have done this by creating a framework in which researchers can cooperate effectively, by giving scientists adequate, prompt financing and by continuously interacting with them.

To counter researchers' endemic conservative stance, we at The Myelin Project constantly remind them of two aphorisms: “fortune favors the brave,” and “you never know until you try.” The founders of the Project are Augusto Odone and his late wife, Michaela Odone. Their only child Lorenzo is afflicted with adrenoleukodystrophy (ALD). Although not medical doctors, the Odones developed a therapy, now adopted on both sides of the Atlantic, that reverses the biochemical defect of ALD. The story of the Odones' struggle against ALD was dramatized in the 1992 Universal Studios release Lorenzo's Oil, starring Nick Nolte and Susan Sarandon. (to purchase please click on the link at the side of this brief)

The Myelin Project headquarters are in the Washington, D.C., metropolitan area, the location of NIH and other sophisticated research facilities, and one of the world's principal centers for medical research. The Myelin Project includes branches in Britain, France, Germany, Italy, Switzerland, and Dubai. Neither Project president Augusto Odone nor the other members of the Board receive compensation. In Britain, France, Germany, and Dubai, the Project officers are also volunteers. *information courtesy of The Myelin Project*

Debs holds copies of Lorenzo's Oil Movie and BBC Interviews and footage of which may shed more light on WHY we need your help, and exactly what the Myelin Project aims to do with the funds we raise!